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2011 JDRF Children’s Congress Media Coverage

June 28, 2011

Last week, JDRF and children with type 1 diabetes from all over the country testified before the Senate Committee on Homeland Security and Government Affairs to thank Congress for its renewal last December of the Special Diabetes Program and highlight the importance of the federal government’s commitment in helping to advance type 1 diabetes research. They also urged federal officials to take immediate action to advance the testing of artificial pancreas systems, which could dramatically change the day-to-day management of type 1 diabetes. This three-day event aimed to raise awareness for type 1 diabetes and the importance of Congressional leadership to help accelerate research to cure, treat and prevent the disease.  Read more.

Meet Texas delegate Carson, from Prosper, TX and hear more about his trip to the U.S. Capitol on our blog next week!

Actor Kevin Kline and JDRF researcher Aaron Kowalski discuss their push to Congress for more research on type 1 diabetes on CNN.

 

View video highlights from each day of the 2011 Children’s Congress! 

 

American Idol Finalist Crystal Bowersox Joins JDRF’s Children’s Congress for Diabetes Research on MyFoxDC

This week, more than 150 kids and delegates from the U.S. and abroad will be on The Hill to advocate for more diabetes research. The event is the Juvenile Diabetes Research Foundation’s (JDRF) 2011 Children’s Congress from June 20 to June 22, 2011. Recording artist and American Idol season 9 finalist Crystal Bowersox will be joining them. Crystal will lead the Song Performance, “Promise to Remember Me” at Children’s Congress. She is also a type 1 diabetic. She joined Fox5 this Monday morning to discuss the issue and the event.

Justice Sonia Sotomayor Opens Up About Diabetes 

Supreme Court Justice Sonia Sotomayor, a life-long diabetic, told a crowd of children with type-1 diabetes that she was 7 years old when the first hints of the disease appeared in her life. She fainted in church, was thirsty all the time, so she drank too much water and wet her bed. “I was ashamed,” the justice said in opening remarks Tuesday to the Children’s Congress of the Juvenile Diabetes Research Foundation.

Advocates, 150 Children With Type 1 Diabetes Urge FDA to Enable Critical Research on Life-Saving Artificial Pancreas to Move Forward 

Concerns about progress, patient access voiced at Senate hearing for JDRF’s Children’s Congress Kevin Kline and four children with type 1 diabetes urged the Food and Drug Administration (FDA) to take immediate action to accelerate the research and review of artificial pancreas systems at a hearing before the Senate Committee on Homeland Security and Government Affairs.

Complete C-SPAN VIDEO of the Senate Hearing with Actor Kevin Kline and other witnesses from JDRF and the world of diabetes research

Witnesses testified on type 1 diabetes research and its impact on children. The Food and Drug Administration (FDA) was in draft stages of guidance on the development of an artificial pancreas system to treat type 1 diabetes.

Read the testimonies from the 2011 Senate Hearing

Bring Children’s Congress Excitement to Your Hometown!

Last week you followed the JDRF Children’s Congress through the advocacy blog and social media. You even had the chance to participate by watching some of the events live on JDRF’s USTREAM channel. Now you can experience the excitement of these meetings without leaving your state as a part of the Promise to Remember Me Campaign!

Join the Children’s Congress delegates and tell your story of living with diabetes by signing up to attend a Promise meeting. Space in these meetings can be limited – register today to ensure you get a spot! The Promise Campaign will start on August 1, 2011!

To learn more about JDRF Advocacy and how you can get involved to make a difference, visit the JDRF Advocacy website.

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To learn more about the JDRF Dallas chapter, visit our JDRF Dallas website!

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